Giving Tuesday and Making An Impact

Giving Tuesday is a global generosity movement unleashing the power of people and organizations to transform their communities and the world…24-hours of giving!

On this day, please consider supporting Family Hope Foundation and our Therapy Scholarship Program. What better gift can be given than Ability? Your donation this Giving Tuesday, in any amount, will be a priceless gift to families in need.

Here is a story one child we were able to help…

Like a little baby bird—skinny and cute—Aidan Wood said hello to the world. The only thing large on his tiny frame was his head, but since big brother had a good-sized noggin, no one was the wiser. It wasn’t until much later that the Wood’s discovered that Aidan’s head circumference at birth was in the hundredth percentile…for three year olds.

The baby years progressed with joyous bliss. Aidan slept great and rarely cried. He didn’t need to be held constantly, in fact, he preferred his swing. This too was an early indicator of things to come. Nearing nine months of age, the babyhood simplicity began to fade.

Delayed milestones weren’t near the forefront of the Wood’s minds until bronchitis became Aidan’s frequent, unwanted friend. An allergist surmised that he was likely aspirating on his formula, causing the respiratory distress. At the same time, she asked if his head size and disjunctive gaze had ever been discussed. Those questions led to CT scans, swallow studies, feeding therapy, thickened liquids, patching eyes, and then two eye surgeries. The Wood’s now knew they were in the elite club of being special needs parents.

Early-on services and Ken-O-Sha schooling helped Aidan move forward in his learning and development. While this season of schooling had it’s huge victories, it also came with its harsh challenges. Aidan’s behavior became more reactive and aggressive. His ability to control his bowel movements (Encopresis) caused bad episodes of soiling in his diapers. On top of that, he was still non-verbal, so he couldn’t communicate his needs.

Around age five, the Woods decided to try a different facility for Aidan’s PT and speech therapy. This is when they met their miracle worker René Manker at BRAINS. She used some of her Feldenkreis training with him in physical therapy, and his coordination and balance improved; and so did his toileting skills. However, when René left, they were worried. What would they do without her?

The following years brought more tests and evaluations. The diagnoses added up—Dysphagia and Reflux, malformation of cortical development, Strabismus (which led to the eye surgeries), Hypotonia/Hypotonic Cerebral Palsy (low or diminished muscle tone), Dysarthria (delayed or poor motor planning in the speech and articulation process), chronic constipation and Encopresis, Mood Regulation Disorder, and then at age seven came a new diagnosis—Sensory Processing Disorder, which was considered the culprit for Aidan’s up and down behaviors. Thankfully with help of occupational therapy, Aidan had more tools and coping skills.

By age ten, Aidan’s therapy services were being limited by insurance. The Woods were no longer seeing increasing results with therapies. Aidan’s behavior was growing more volatile at school and at home. Remembering how much progress they saw with René, Aidan’s mother, Amy, decided to try Google. And yes, Google proved helpful. Amy discovered Senses In Motion, a company in which René owned! Unfortunately, she noted that insurance wasn’t accepted there. She knew they couldn’t afford to pay out of pocket.

At this time, Amy had been volunteering for Family Hope Foundation for a couple of years at the Celebration Cinema sensory show times. She hadn’t applied for a scholarship before, but figured it was time to try. The Woods were thrilled when Aidan was awarded funds for ABM (Anat Baniel Method of Neuromovement) therapy with René. This form of therapy has been pivotal in helping Aidan with Dyspraxia. Aidan’s brain struggles to organize the information needed for his body to carry out even simple tasks. With his brain struggling to appropriate information, he finds himself oftentimes frustrated, triggering emotionally reactive behavior. But with ABM therapy, he is making strides in both conceptual and sensory processing and behavioral responses.

After one full year of ABM, Aidan has fewer meltdowns, aggressive behaviors are on the decline, his processing speed is growing, and he is able to learn easier. But most importantly, his silly personality is returning.

Through all the trials, hardships, and diagnoses, Aidan has pressed on. It hasn’t been easy for him or his family, but they have all chosen to see the glass full and not empty. They count their blessings, not misfortunes. If the Woods could be summed up in a word it would be—optimistic. It is because of this that Aidan is blooming, and his hilarious nature is shining once more.

 

Aidan is one of the amazing kids we have been able to support. Join with us in giving the Gift of Ability to more children.

http://bit.ly/GivingTuesdayFHF

 

Our Contact Information

Family Hope Foundation

7086 8th Avenue
Jenison, MI, 49428

616-729-8833

www.familyhopefoundation.org

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